Get Involve

Comment on NEW CMS Regulations!

The Centers for Medicare and Medicaid Services (CMS) has published regulations to better define the settings in which states can provide Medicaid Home and Community Based Services (HCBS). The final rule became effective March 17, 2014 to ensure people receive Medicaid HCBS in home and work set-tings that are integrated in and support full access to the greater community.

The new regulations require the state to develop a transition plan to make certain that settings operated by Community Support Providers (CSP) meet the new CMS settings requirements. The new regulations also require states to obtain public input regarding the transition plan. The Division of Developmental Disabilities (DDD) will be hosting public forums, as well as a webinar, to gather feedback from self-advocates, families, guardians, advocacy organizations and CSPs. The DDD will use the input to further develop the transition plan. A draft copy of the transition plan is available at

You Can Provide Input at these Dates and Locations
February 9
9:00 am—10:30 am CST
Country Inn and Suites
3400 8th Ave Southeast

February 9
Sioux Falls

1:00 pm—2:30 pm CST
Holiday Inn- City Center, Falls West Room
100 West 8th Street

February 10
Rapid City
9:00 am—10:30 am MST
Ramkota, Washington Room
2111 North LaCrosse Street

February 12

9:00 am—10:30 am CST

Contact Colin Hutchison, CHOICES Waiver Manager, Division of Developmental Disabilities, for invitation information.  1-800-265-9684.  Email:

Your participation and input is an extremely valuable part of the transition plan process.  Please contact Colin Hutchison if you have questions related to the forums, webinar or transition plan.

Share Your Advocacy Stories
Share your story to demonstrate the importance of advocacy from an individual, family member, or caregiver in a new advocacy toolkit.

Genetic Alliance is partnering with Parent to Parent USA (P2P) and Family Voices (FV) to collect resources that will support individuals who wish to act as advocates on behalf of themselves, their families, or others living with the same condition. To date, we have collected over 240 resources that will help users build leadership, communications, outreach, and advocacy skills. The tools will be part of an accessible online toolkit, with advocacy resources grouped by topic area.

We would like to include a personal story that demonstrates the importance of advocacy from an individual, family member, or caregiver in each of the toolkit topic areas. For this project, ‘advocacy’ can include any example of a time when you or your family communicated a need, shared your story, or took steps to get something you wanted or needed.

Do you have a story to share about advocating in one of the following areas?
  • Youth Leadership
  • Transition to Adulthood
  • Insurance and Financial Assistance
  • Communicating about Your Health
  • Access to Health Care
  • Accessible Communities
To have your story included in the advocacy toolkit for individuals and families, please send a 1-3 paragraph summary to Sharon Romelczyk, Program Manager at Please only include information you wish to be shared, including any and all names or other identifying information. If we include your story on the toolkit, we will contact you to let you know your story has been selected.

Direct any questions about the stories, how they will be used for the toolkit, or the toolkit in general to

Other Ways to Get Involved:

Impact Public Policy