Get Involve
Nominate Young Person for Richard L Hicks Award by April 30

Nominations are open for the Richard L. Hicks Award, which will be presented at the Youth Leadership Forum (YLF) in Aberdeen in June 1-5. The award is presented to a young adult with a disability who

  • Has participated in a leadership role in a past YLF event
  • Demonstrates leadership qualities in their community - school, local, statewide, national
  • Has demonstrated leadership through being a positive role model for other young adults with disabilities
  • Is actively pursuing post-secondary education and/or employment
To nominate an individual for the award send a 50 word description of why your nominee deserves the award. Be sure to include the nominee's name and address. Send nominations to bev.petersen@state.sd.us by April 30.



Share Your Advocacy Stories
Share your story to demonstrate the importance of advocacy from an individual, family member, or caregiver in a new advocacy toolkit.

Genetic Alliance is partnering with Parent to Parent USA (P2P) and Family Voices (FV) to collect resources that will support individuals who wish to act as advocates on behalf of themselves, their families, or others living with the same condition. To date, we have collected over 240 resources that will help users build leadership, communications, outreach, and advocacy skills. The tools will be part of an accessible online toolkit, with advocacy resources grouped by topic area.

We would like to include a personal story that demonstrates the importance of advocacy from an individual, family member, or caregiver in each of the toolkit topic areas. For this project, ‘advocacy’ can include any example of a time when you or your family communicated a need, shared your story, or took steps to get something you wanted or needed.

Do you have a story to share about advocating in one of the following areas?
  • Youth Leadership
  • Transition to Adulthood
  • Insurance and Financial Assistance
  • Communicating about Your Health
  • Access to Health Care
  • Accessible Communities
To have your story included in the advocacy toolkit for individuals and families, please send a 1-3 paragraph summary to Sharon Romelczyk, Program Manager at sromelczyk@geneticalliance.org. Please only include information you wish to be shared, including any and all names or other identifying information. If we include your story on the toolkit, we will contact you to let you know your story has been selected.

Direct any questions about the stories, how they will be used for the toolkit, or the toolkit in general to sromelczyk@geneticalliance.org.




Join the Conversation for Change:
A National Dialogue to Improve Transition Outcomes

Help shape federal agency strategies for helping youth and young adults with disabilities successfully transition from school to work

If you are a Parent, Policymaker, Service Provider, or a member of the Advocacy Community join this conversation to improve transition outcomes. You will be able to provide input from May 13 until May 27, 2013. Members of the public are invited to participate in an online dialogue to examine the impact of existing federal regulations and legislation on the successful transition from school to work of youths and young adults with disabilities.

Online registration will begin May 7, 2013. (Instructions for registering are available at http://fptepolicyworks.ideascale.com/.

Once registered, participants may submit ideas, submit comments about ideas, and rate those ideas they think are the most important. The dialogue will be facilitated to ensure participants experience a robust and productive exchange.




Other Ways to Get Involved:

Impact Public Policy

Research

Surveys

Volunteer