Through our partnership with the Center for Disabilities, the SDPC lending library has been incorporated into the Wegner Health Science Center library. More information on accessing Wegner Health Science Center Resources.
Resources and Tools for Families
Topics you will find here:
Assistive Technology | Behavioral Mental Health | Bullying | Electoral Advocacy/Impacting Public Policy | Extended School Year (ESY) | Guardianship/Substitute Decision Making | Homework | Immunizations | Medicine | Nutrition/ Feeding | Puberty/Sexuality | The School Year | Special Education/504 Plans | Safety | Supplemental Security Income (SSI) | Toileting | Transition:Education, Training, Scholarship, Internships | Transition: Employment | Travel
Technology Resources for Families and Professionals who Support Young Children with Disabilities
Technology can be a great tool to help young children with disabilities be successful, and PACER's TIKES Project (Technology to Improve Kids' Educational Success) has excellent resources for parents and professionals. The website offers training videos, tip sheets, and other helpful information for families, teachers, and administrators who work with young children with disabilities or developmental delays. Learn more about this project and explore resources at www.PACER.org/stc/tikes
Quick, Easy Videos Offer Assistive Technology Tips & Tricks
Looking for information on Assistive Technology (AT) in a quick and easy format? AT Minute is an inn ovative, practical series of videos that was created by PACER's Simon Technology Center. Viewers will learn tips and tricks on how to get the most out of tablet computers, text to speech software, word prediction software, and other assistive technology. Watch the AT Minute videos on PACER's YouTube channel.
Family Center on Technology and Disability http://www.fctd.info/
iPad App for Those with Developmental Disabilities. It's My Future! is a new app for iPad designed to support students and adults with developmental disabilities to become more self-determined and participate in their annual planning meetings. The app provides self-paced videos to enable people with developmental disabilities to learn more about planning and leading their meetings. Eight sections cover topics such as choice making, decision making, goal setting, community living, employment, fun and leisure, and communication skills. Narration, a written outline, and colorful graphics support people to understand more about self-determination and how to become engaged in their planning meetings. Download the app from the app store at https://itunes.apple.com/us/app/its-my-future%21/id599009088?mt=8&ign-mpt=uo%3d2
New Tikes Website offers technology resources for families and professionals who support young children with disabilities.
Technology can be a great tool to help young children with disabilities be successful, and PACER's TIKES Project (Technology to Improve Kids' Educational Success) has excellent resources for parents and professionals. The website offers training videos, tip sheets, and other helpful information for families, teachers, and administrators who work with young children with disabilities or developmental delays. Learn more about this project and explore resources at PACER.org/stc/tikes.
Center for Parent Information and Resources - Behavior Suite
Divided into subject areas to make it easy to understand, you will find information and resources designed to help children who have behavior challenges.
Family Guide to Systems of Care for Children With Mental Health Needs
Are you concerned that your child needs help getting along with others, controlling his or her behavior, or expressing emotions? Depending on your child's needs and your family's situation, you might look for help from schools, health clinics or hospitals, health insurance providers, community mental health centers, social service programs, and, possibly, the courts. This Family Guide informs caregivers and families about how to seek help for children with mental health problems. In Spanish and English.
Family Guide to Systems of Care for Children With Mental Health Needs.
How to Help Children with ADHD Control their Emotions
Video: Bullying, Harassment, & Civil Rights - An Overview of School Districts' Federal Obligation to Respond to Harassment
Designed to help schools, parents, and others who interact with kids understand the differences between harassment and bullying, and their legal obligations with respect to both.
PACER's National Center for Bullying Prevention
Visit this is the page for parents and educators to access bullying resources, which include educational tool kits, awareness tool kits, contest ideas, promotional products and more.
Is YOUR Child the Bully? Tip Sheet
This article gives information on the signs that your child is a bully and how to stop the behavior.
Great Schools Bullying Page
A collection of several articles on bullying.
Nearly 60 percent of children with learning and attention issues experience bullying. www.understood.org offers resources to help parents address this all-too-common problem. Learn 9 concrete steps to take if they suspect bullying at school, get advice on how to help children respond if they are bullied, and find out what to do if kids participate in bullying.
Analysis of State Bullying Laws and Policies
Just what is the law against bullying? What are the consequences? A wealth of information that answers those questions and more. http://www2.ed.gov/rschstat/eval/bullying/state-bullying-laws/state-bullying-laws.pdf
Electoral Advocacy/Impacting Public Policy
Not sure how to effectively connect with your legislators?
Legislators are citizens, just like you. Have confidence that the perspective and experience of parents and/or professionals working with children with special needs are needed and welcomed by legislators. Your personal story IS powerful and may make all the difference when a final vote is taken.
Click here for Electoral Advocacy Information
Connect to South Dakota Legislative Research Council
A national, nonprofit, family-led organization promoting quality health care for all children and youth, particularly those with special health care needs.http://www.familyvoices.org/
Extended School Year (ESY)
SDPC Navigator Notes - Extended School Year
Video: SDPC Presentation - Extended School Year
Extended School Year Services (ESY) - Wrightslaw
Extended School Year Guide, SD Dept of Education
Guardianship/Substitute Decision Making
Guardianship Infographic for Students
Guardianship and Conservatorship FAQs
Guardianship - One Size Does Not Fit All
Presentation by Robert Kean, SD Advocacy Services
(Note: link takes you to survey money registration form first)
Dealing with Homework Refusal & Failure
Article by Sue Whitney.
Homework Help for Parents
Information found on About.Com
Success At School - Homework Routines to Help Kids Score
For tips on how parents and teachers can help students with ADHD achieve better work skills, a sense of accomplishment and lots of after-school smiles, visit:
Healthy Kids.org - AAP
Autism: Medicine Decision Aid
Should My child Take Medicine for Challenging Behavior? A Decision Aid for Parents of Children with Autism Spectrum Disorder. This new 21-page guide is available online and at NO COST from Autism Speaks. http://www.autismspeaks.org/sites/default/files/documents/atn/medicine_decision_aid.pdf
Up and Away and Out of Sight: Safe Medicine Storage
Every year, more than 60,000 young children end up in emergency rooms because they got into medicines while their parent or caregiver was not looking. The Up and Away and Out of Sight educational program was created to remind families of the importance of safe medicine storage. To help keep children safe through proper medicine storage, Up and Away and Out of Sight educates parents and caregivers by reminding them about safe medicine storage; providing them with information and tools to keep their child/children safe and encouraging them to take action. To learn more about the program and its resources and tools, visit: http://www.upandaway.org
In Spanish: http://www.upandaway.org/es
For more information about what you do to prevent accidental poisoning, please visit the Poison Help site. Remember to program the Poison Help number 1-800-222-12222 into your cell phones!
Support Feeding & Oral Development in young children with Down Syndrome, Congenital Heart Disease and Feeding difficulties.
Click here to download guidelines for parents.
"Becoming a Woman. Teaching Healthy Sexuality to My Daughter." IMPACT https://ici.umn.edu/products/impact/232/8.html
"Sexuality Education - Part 1: Foundation of Healthy Attitudes" Disability Solutions. http://downsyndromenutrition.com/images/stories/dsolnsvol4/4-5.pdf
"Sexuality Education - Part 2: Building on a Foundation of Health Attitudes" Disability Solutions. http://downsyndromenutrition.com/images/stories/dsolnsvol4/4-6.pdf
Steps to Success: Communicating with Your Child's School
This brief publication offers specific communication skills that may be helpful to parents as they develop and maintain partnerships with their child's school. http://www.directionservice.org/cadre/success.cfm
What Parents & Caregivers Can Ask & Do to Help Children Thrive at School
Back to School Tips for Parents of Children with Special Needs
Back to School Guide for Children with ADHD and Learning Difficulties
Back to School Tips for Children with ADHD
Parents Tips - Back to School
More Back to School Tips for Children with Special Needs
Back to School Series - Wrightslaw
25 Ways to Make This the Best School Year Ever
Preparing for Parent-Teacher Conferences
From Great Schools:
The Purpose of Parent Teacher Conferences
Guide to Success@School for Children with ADHD
ADHD Study Tips for Math, Essay, and Multiple-Choice Tests
ADHD students dread the pressure and information overload of final exams. Use these specific tips to prepare wisely for all of your multiple-choice, math, and essay tests at school.
Special Education/504 Plans
Special Education and IEP Advisor
Special Education Advisor.com is a community of parents, educators, and special education service providers dedicated to helping families with special education needs children understand their special education rights and receive appropriate special education services.
A Checklist for Evaluation Requests
Developed by South Dakota Parent Connection and South Dakota Advocacy Services.
Sample Request for an Evaluation
Download Sample Request for Evaluation Letter
A Parent's Guide: Educational Interventions and Evidence-Based Practices
IEP TA and Eligibility Guide
Video: What is a 504?
Preparing Parents for an IEP - A Few Suggestions
- Prepare notes about what they want to learn/find out at a meeting.
- Bring someone along a s a source of support.
- If compromising, define how and when to evaluate if compromise is working.
- Try to remain calm.
- Saying I don't know what you mean" is a demonstration of confidence and competence
Video: What's the difference between an IEP and a 504 Plan?
Information, resources, social stories and more. Includes Family Wandering Emergency Plan, Alert Form for First Responders, Sample IEP Letter. http://awaare.nationalautismassociation.org/
Autism Risk Management
Autism training and resources for law enforcement, emergency first responders, parents, educators, care providers, and the autism community. Includes downloadable forms. www.autismriskmanagement.com
Safe Kids USA
Safety VIDEOS show how you can take precautions in the home to help prevent injuries to children with physical, developmental or cognitive disabilities. http://www.safekids.org
My Precious Kid http://www.mypreciouskid.com
Brickhouse Security Child Locator Devices.
Tip: For families connected to Family Support 360, check to see if funding may be used for security devices needed to keep your child safe. http://brickhousesecurity.com/about-child-locators-gps-tracking.html
Parents can learn how to protect their children from online dangers by accessing the tips and tools (English and Spanish) provided. http://www.netsmartz.org/netparents.htm
Supplemental Security Income (SSI)
SSI Home Page
SSI Benefits for Children
Social Security Benefit Information and Tips
SSA Listing of Impairments
For both children and adults on left of screen.
Benefit Eligibility Screening Tool
For both children and adults on left of screen.
Social Security and Disability Resource Center
An independent site which provides information social security benefits for individuals with disabilities.
Mike Walling's Social Security Benefits Site
For information on Social Security Benefits visit Mike Walling's independent website.
Autism 209: Toilet Training for Individuals with Autism and Developmental Disabilities,
Seattle Children's Hospital
Potty Training Your Special Needs Child
Article provided by WonderBaby.org. www.wonderbaby.org/articles/potty-training-your-special-needs-child
Toilet Training a Child with Special Needs
An article about Toilet Training a Child with Special Needs. http://www.rifton.com/adaptive-mobility-blog/potty-training-special-needs-children/
Toilet Training Children with Special Needs
An article about Potty Training Children with Special Needs.
Toilet Training - BBB Autism Network
An article about Toilet Training on the BBB Autism Network site.
Transition: Education/Training and Scholarships/Internships
Do you have questions about post-secondary education opportunities for your youth with an intellectual disability? Think College, a technical assistance center that works to improve access to post-secondary education for students with intellectual disabilities, offers resources for families. It has developed a series of web-based, self-paced learning modules that share information by using multimedia tools such as videos, publications, interactive learning activities, and podcasts.
Going to College
This website provides a range of information for high school students with a disability who are, or will be attending college. The site contains video clips, activities, and resources that can help students explore more about themselves, learn what to expect from college, and examine important considerations and tasks to complete when planning for college.
Family Educational Rights and Privacy Act (FERPA)
The Family Educational Rights and Privacy Act (FERPA) is a federal law that affords parents the right to have access to their children's education records, the right to seek to have the records amended, and the right to have some control over the disclosure of personally identifiable information from the education records. http://www2.ed.gov/policy/gen/guid/fpco/faq.html
National Center for Secondary Education and Transition
Provides information related to secondary education and transition for youth with disabilities in order to create opportunities for youth to achieve successful futures. http://www.ncset.org/
The remedial coursework program is offered through the South Dakota Virtual School by DIAL. Students must register for coursework through their local school district through the SD Virtual School. Students who successfully complete the remedial coursework program while in high school are able to avoid remedial coursework at South Dakota's technical institutes and Board of Regents institutions.
Download more Information on Remedial Coursework for High School Seniors.
A Guide to College Life for Those with Autism
The guide offers tips on everything from classroom accommodations to dealing with roommates, and is written by adults with the developmental disorder. It is geared toward individuals with autism rather than parents or professionals.
Educational Opportunities for Students with Bipolar and Schzophrenia Disorders
The Lilly Reintegration Scholarship Program is designed to offer financial assistance for a wide range of educational opportunities in which students work to attain a certificate or degree in high school equivalency programs, trade or vocational school program, associate, bachelor degrees and graduate degrees. Eligible applicants must be diagnosed with bipolar, schizophrenia, schizophreniform or schizoaffective disorder; currently receiving medical treatment; actively involved in rehabilitative or reintegrative efforts and complete the application package. For more information go to http://www.reintegration.com.
VIDEO: A Transition Story
When you have a moment to take a break in what are very busy days, check out this video from Ben Fleischman. The WI Board for People with Developmental Disabilities commissioned the video for their annual Self-Determination Conference.
Practical Guide for People with Disabilities Who Want to Go to College
The document provides information for people with disabilities considering higher education. http://tucollaborative.org/sdm_downloads/a-practical-guide-for-people-with-disabilities-who-want-to-go-to-college/
National Down Syndrome Society (NDSS)
The mission of the O'Neill Tabani Enrichment Fund is to offer financial assistance to young adults with Down Syndrome - 18 and older - who are continuing to enrich their lives by taking classes or enrolling in post-secondary educational programs. Read more and download the application at
National Youth Leadership Center's (NYLN) Resource Clearinghouse
Find resources for youth with disabilities in the areas of Education, Employment, Healthcare, Disability History/Disability Culture, Advocacy, Policy, Material by and for Young People with Disabilities, International Exchange, Documents from NYLN and KASA (Kids as Self Advocates), Scholarships Currently Available, Financial Aid for Students with Disabilities, Scholarship News Website, Youth Information Centers, Association of Youth Leadership Forums, and Disability Related Organizations. http://www.nyln.org/Clearinghouse/resourceclearinghouse.html
Needy Meds has a listing of scholarships that are offered for students with specific diseases. There are also some for students who have a parent or a family member with a specific disease. Most can be used at any school. Most have some type of eligibility requirements, usually financial ones. The scholarships are sorted three ways:
By Residency of Applicant
By Scholarship Name
Additional resources available in SDPC's Family Resource Guide
National Collaborative on Workforce and Disability
This website looks specifically at what youth with disabilities need to know to prepare themselves for careers or meaningful jobs, and what parents need to know to ensure that their children are getting all of the things they need to succeed. You will find a wealth of resources.
Vocational Rehabilitation Services
A program that provides individualized vocational rehabilitation and supportive services to assist eligible individuals with disabilities to get and keep jobs compatible with their skills and abilities.
Workplace Flexibility Toolkit
Provides employees, job seekers, employers, policymakers and researchers with information, resources and a unique approach to workplace flexibility. Searchable by type of resource, target audience, types of workplace flexibility (place, time, task). http://www.dol.gov/odep/workplaceflexibility/
Employment Initiative Staff Can Help Youth (ages 18-24) with Disabilities Find Employment
Disability Employment Initiative (DEI) staff in the South Dakota Department of Labor are available to help young adults with disabilities (ages 18-24) find employment. For more information contact your local SD Department of Labor and Regulation office. For a list of South Dakota offices with contact phone numbers, visit
NCWD/Youth - Navigating the Road to Work
The NWCD/Youth website looks specifically at what youth with disabilities need to know to prepare themselves for careers or meaningful jobs, and what parents need to know to ensure that their children are getting all of the things that they need to succeed. http://www.ncwd-youth.info/
Portal for Employers and Technology Industry
www.PEATworks.org, a comprehensive web portal aimed to help employers and the technology industry adopt accessible technology as part of everyday business practice so that all workers can benefit.
PACER's National Parent Center on Transition and Employment
Provides information and resources to support families, youth, educators and employers as they help teens and young adults with disabilities or special needs reach their goals into adulthood.
Additional resources available in SDPC's Family Resource Guide.
Travel and recreation for people with disabilities
If you'd like to travel this summer and disability is a consideration, check out this website of useful resources for travel planning, destinations, transportation, air travel, travel books, and travel companions. http://www.makoa.org/travel.htm