Children and youth with special health care needs (CYSHCN) have (or are at increased risk for) a chronic physical, developmental, behavioral, or emotional condition and who also require health and related services of a type or amount beyond that required by children generally. Because the health care needs of CYSHCN may be chronic and complex, parents and caregivers often struggle to find the resources and services their children need. F2F HICs are in a unique position to help families because they are typically run by parents of CYSHCN themselves, and as parents, they have traveled through the maze of services and programs designed to help.
The Family-to-Family Health Information Center (F2F HIC) provides information and guidance to families, and the professionals who serve them, to access services and resources for children and youth with special health care needs.
The F2F HIC is funded by a grant through the U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau, Division of Services for Children with Special Health Needs. This grant program was established by the Family Opportunity Act of 2005, amended by the Patient Protection and Affordable Care Act of 2010.
Family Voices state affiliate organization.
Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through this national network, Family Voices provides families tools to:
- Make informed decisions,
- Advocate for improved public and private policies,
- Build partnerships among professionals and families, and
- Serve as a trusted resource on health care.
Please visit their website to learn more about the national initiatives of Family Voices.